University of Limerick study sheds light on economic burden of dealing with skin condition
A STUDY conducted by the University of Limerick (UL) has shed light on the staggering economic burden faced by those suffering from the excruciating skin condition known as epidermolysis bullosa (EB) in Ireland.
The research reveals that the cost of caring for an EB patient in Ireland exceeds €130,000 per year, placing an immense financial strain on families.
EB is an extremely painful and rare genetic disorder that affects approximately 300 people in Ireland.
It is characterised by the absence of essential proteins that bind skin layers together, leading to severe blistering and open wounds even from minor friction or touch.
The new findings demonstrate that the estimated cost of EB to families is €130,021 per patient annually. This cost encompasses various expenses, including wound management, frequent GP visits, hospitalisation, and even early retirement.
Comparing Ireland to other countries, the research report titled Life with EB in Ireland, has prompted calls from the charity Debra, which supports families affected by EB, for the government to establish a €400,000 bandage scheme akin to those in Spain and Australia.
This would provide a much-needed lifeline, as specialised bandages can cost thousands of euros each month, especially affecting those without medical cards.