Am I just tired or is it ME?
ME, or myalgic encephalomyelitis, is a serious, long-term chronic illness that impacts the sufferer, leaving them often suffering from extreme exhaustion. ME has for a long time been under-researched, but as awareness of the condition grows, more people are coming forward for help.
As a grouping of symptoms, instead of a clearly identifiable illness, ME is very hard to diagnose and thus people can suffer for years before getting help for it. Symptoms can include exhaustion, digestive issues, muscle weakness, shortness of breath and irregular heart rate.
Overlapping symptoms
Covid has made ME more prevalent, but people still find it so difficult to know what may just be tiredness.
“It is really difficult to tell the difference. ME and CFS (chronic fatigue syndrome) have a lot of overlap [with tiredness] and there have been a lot of issues with long covid with these long persisting post-viral malaise, where even if people sleep well, they may still feel exhausted,” says GP and men’s health specialist Dr Anand Patel.
Get checked out
“If you have had persisting symptoms for more than a few weeks or they are really severe, speak to your GP,” says Patel.
Particularly if “you are sleeping okay, your diet, caffeine and alcohol intake are okay, but your symptoms are persisting. They may check your thyroid and blood count”, he explains.
“With ME, you may be so tired you can barely stay awake in the day. We are still in the exploratory stage of what does cause it, but if you have had psychological trauma or illness it is more likely to be ME that has caused these prolonged symptoms. It can be hard to find things during tests and scans, but of course, there are conditions we don’t have tests for or are hard to identify,” he explains.
Be clear of your symptoms
“It is really difficult to diagnose something if you can’t find it, so a patient needs to explain symptoms and how they are feeling. Many people with it don’t feel seen, and a doctor may be struggling to find a specific answer,” Patel explains.
Keeping a diary of symptoms may help to make it clear.
Vitamin deficiencies
Consider what the other causes may be.
“Tiredness could be caused by blood count and anaemia, thyroid function and deficiencies, dietary changes and vitamin deficiencies,” says Patel.
“If you have a varied diet, these are unlikely. B12 and folic acid deficiency are common, they make blood make new cells and are important in nerve function. Also, it could be vitamin D deficiency, a lot of people need to take a vitamin D tablet every day in the UK because we don’t get enough sun and slap on factor 50 as soon as it does come out,” Patel says.