Saddle Up for Down Syndrome returns to Kilkenny as essential service gaps persist

Family-led group Down Syndrome Kilkenny launched its flagship fundraiser, Saddle Up for Down Syndrome Kilkenny, this week ahead of World Down Syndrome Day on March 21.

The charity cycle and family fun day, set at Danesfort GAA Club, returns this year for its third annual fundraising event on Sunday, April 26, 2026.

Kilkenny is a ‘black spot’ for essential services, according to the organisation.

The local voluntary group has spent the last number of years raising funds to provide services that many families believe their children should be able to access through the Health Service Executive.

In 2025, the branch raised over €120,000, driven primarily by the efforts of local families, volunteers, and supporters.

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These funds have enabled the provision of Speech and Language Therapy services for children, with more than €45,000 invested in therapy supports alone, as well as the employment of a part-time administrator to coordinate services, support families and their advocacy, and secure additional grant funding.

The funds raised through Saddle Up for Down Syndrome Kilkenny have also supported Easter and summer camps, one-to-one swimming lessons, social activities, therapeutic pony riding, sports camps, and other inclusive programmes that help children and adults with Down Syndrome participate more fully in community life.

Earlier this year, parents from the Kilkenny branch held a public briefing at the River Court Hotel to shine a light on the reality facing families of children and adults with Down Syndrome.

Following the meeting, the issue was raised in Dáil Éireann, which led to engagement with Micheál Martin's office, which met representatives of the group on March 4, 2026.  

"The support shown by public representatives from all parties has been deeply valued. But families now need more than understanding. They need action," explains the Chairperson of Down Syndrome Kilkenny, Sean Manicle.

"The branch is continuing to advocate strongly for the appointment of a full-time Speech and Language Therapist in Kilkenny to meet the very real need that exists locally.

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"This year, we’re hoping to raise over €100,000 once again to support families across Kilkenny. These funds go directly towards vital developmental, therapeutic and social supports, which can make a real and lasting difference, especially when children can access them early and build towards their full potential.

"With our third Saddle Up for Down Syndrome Kilkenny now just a couple of weeks away, we’re looking forward to another great day for the community.

"It’s always a wonderful occasion, with plenty of fun and a fantastic atmosphere in Danesfort afterwards, and we’d encourage as many people as possible to come along and get involved."

GET INVOLVED

Saddle up for Down Syndrome Kilkenny has launched, with registration now open on Eventbrite. 

Cyclists can choose from three routes, including a relaxed tour of Kells, Bennettsbridge, Gowran and Thomastown on the 45km trail.

Experienced riders can choose the 65km or 105km routes that take them to Paulstown and Leighlinbridge, with a return via Ballygorteen to Danesfort GAA Club.

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Cyclists can refuel at one of two pit stops along the way at Gowran Race Park, Paulstown GAA and O'Loughlin Gaels GAA Club.

All cycles return to Danesfort GAA club grounds for hot showers, burgers, ice cream, and a family fun day from midday. Activities include a bouncy castle, live music, street food and more.

Down Syndrome Kilkenny is calling on cyclists of all abilities to sign up for the event and help support local families. Tickets are now available for €45 from Eventbrite.