Family of rugby league star Rob Burrow opens state-of-the-art MND centre

The family of the late rugby league star Rob Burrow has opened the first purpose-built centre dedicated entirely to MND care, research and support, which has been hailed as a “transformative moment in care”.

The Rob Burrow Centre for Motor Neurone Disease (MND) was officially opened at Seacroft Hospital in Leeds on Monday.

Burrow’s son Jackson helped cut the ribbon surrounded by his mother, Lindsey, her other children – Macy and Maya – Burrow’s parents, and dozens of supporters who have helped realise the project.

The centre was the dream of the Leeds Rhinos star and his consultant Dr Agam Jung, who also wielded the scissors on Monday morning.

Mrs Burrow told BBC Breakfast: “It’s a really special day.

“Just incredibly proud to be here, to have so many of the staff that work at the centre and the patients here, it’s such an honour to be here.”

She said: “This is the flagship centre but, hopefully, other centres will open. This is the first of its kind in the UK.

“To have this centre here in Leeds is incredibly special in Rob’s name.”

Her daughter Macy said: “It’s just incredible, and we’re all really proud, and I know my dad would be immensely proud.”

The centre been made possible thanks to a £6.8 million fundraising campaign, led by Leeds Hospitals Charity and supported by Burrow’s friend and former Leeds Rhinos teammate Kevin Sinfield.

More than 17,000 donors have contributed so far to the centre and patients, their families, clinical specialists and the wider MND community have all been involved in its design.

The building work has been completed less than 18 months after Burrow died in June 2024.

Dr Jung, who is consultant neurologist at Leeds Teaching Hospitals NHS Trust and director of the centre, said it is born from Burrow’s determination to create a place that treats patients as people, not conditions.

She said: “It has been five years since the germination of the idea to build this centre – a legacy of Rob’s strength, his family’s support, and the compassion of an entire community.

“I’m so grateful to so many people who have worked together to make this dream a reality.

“I was very pleased when Rob fully embraced the Leeds MND Service ethos of ‘Living in the Now’.

“He wanted to leave a legacy for people to be able to do so, and this has spread across the MND community.

“All of us who work in this incredible new centre will focus on providing the very best care and community for families and patients to do just that.”

Chief executive of Leeds Hospitals Charity, Esther Wakeman, said: “When we launched the fundraising appeal with Dr Jung and the Burrow family in September 2021, we could have never imagined the outpouring of support it would receive, from right across the country.

“In just three years, we were able to reach the £6.8 million target.

“We would like to say a special thanks to Kevin Sinfield for his heroic fundraising, going above and beyond in honour of his friendship with Rob, and he goes again this year with his latest challenge.

“He has inspired so many people.”

Sally Hughes, director of services and partnerships at the MND Association, said the centre “marks a transformative moment in care for people with MND in Leeds and across West Yorkshire”.

She said: “This purpose-built facility, inspired by our late patron, will provide a supportive and compassionate environment for everyone affected by MND – for the person diagnosed and their family too which is so important when facing such a life-changing disease.”

Burrow died at the age of 41 after a four-and-a-half-year battle with MND.

The ground-breaking ceremony for the MND centre went ahead on the day his death was announced, with his family saying he “would be looking down and smiling”.

Health and Social Care Secretary Wes Streeting said: “Rob Burrow was an inspiration to so many people, and his courage in the face of motor neurone disease helped shine a light on this devastating condition.

“The opening of a centre in his name is a fitting tribute to his legacy as well as to the unwavering dedication of his family and supporters who campaigned alongside him. 
 
“Motor neurone disease has a devastating impact on people’s lives and we are determined to find a cure.

“We will continue to back MND research at every stage – from understanding what causes this cruel disease to prevention, diagnosis, treatment and care.

“Rob’s legacy will drive us forward in that mission.”