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Derry woman living with rare condition working to raise awareness

Derry woman, Rosaline Callaghan, was diagnosed in 2019, with the rare condition known as hereditary amyloidosis. It is a condition geographically specific to North West Donegal. Rosaline chats to Derry News about her condition, the support she has ...

27 Jan 2023 at 16:33

Derry News

Derry support group seeks to help those living with a rare condition

Members of the North West Rare Disease Support Group are meeting in the Holywell Trust, Derry on Friday 9 June from 2pm until 4pm. The group is supported by Northern Ireland Rare Disease Partnership (NIRDP), the charity working to advocate, ...

02 Jun 2023 at 16:33

Derry News

The Northern Ireland Rare Disease Partnership celebrate ten years of hard work and look to the next ten years

The Northern Ireland Rare Disease Partnership (NIRDP) welcomed colleagues and friends, past and present, as they celebrated 10 years of hard work as an accredited charity. They reflected on the last ten years and how far they have come- ...

01 Dec 2022 at 17:33

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NIRDP
Rare disease
Northern Ireland Rare Disease Partnership
hereditary amyloidosis
Diagnosis
Support
Donegal Amy

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