All the updated news related to cure dhdds

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Family

‘My kids’ condition makes them two of seven confirmed cases worldwide and we’re racing against time to find treatments’

A London family whose two children have a gene mutation so rare they are two of just seven confirmed cases in the world – with the neurodegenerative condition causing tremors, coordination issues, and learning difficulties, and potentially leading ...

13 Mar 2024 at 06:30

Health

Dad to cycle nearly 1,000 miles on tandem bike in lab coat to fund research into treatment for kids’ ultra-rare disease

A father will cycle nearly 1,000 miles on a tandem bike wearing a lab coat to fund research into treatments for his two children who have an ultra-rare condition which affects just 70 people worldwide. Mel Dixon, 45, and her husband Charlie, 47, ...

13 Sept 2024 at 11:50

Family

Parents of kids with disease which makes them two of only seven confirmed cases worldwide raise £70k with ‘warrior walk’

The parents of two children who have an incurable ultra-rare disease which makes them two of only seven confirmed cases worldwide have raised £70,000 with a nine-hour “warrior walk” across London. Mel Dixon, 46, and her husband Charlie, 47, who ...

11 Jun 2025 at 06:30

Years
2026

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