All the updated news related to cure dhdds

All the news related to cure dhdds updated in real time

Found 3

forcure dhdds

Order by:

Health

Dad to cycle nearly 1,000 miles on tandem bike in lab coat to fund research into treatment for kids’ ultra-rare disease

A father will cycle nearly 1,000 miles on a tandem bike wearing a lab coat to fund research into treatments for his two children who have an ultra-rare condition which affects just 70 people worldwide. Mel Dixon, 45, and her husband Charlie, 47, who ...

13 Sept 2024 at 11:50

Family

‘My kids’ condition makes them two of seven confirmed cases worldwide and we’re racing against time to find treatments’

A London family whose two children have a gene mutation so rare they are two of just seven confirmed cases in the world – with the neurodegenerative condition causing tremors, coordination issues, and learning difficulties, and potentially leading ...

13 Mar 2024 at 06:30

Family

Parents of kids with disease which makes them two of only seven confirmed cases worldwide raise £70k with ‘warrior walk’

The parents of two children who have an incurable ultra-rare disease which makes them two of only seven confirmed cases worldwide have raised £70,000 with a nine-hour “warrior walk” across London. Mel Dixon, 46, and her husband Charlie, 47, who ...

11 Jun 2025 at 06:30

Years
2025

Iconic Media is Ireland's largest independently owned regional newspaper and media group, with an unrivalled audience in print, online and mobile. We have 19 regional newspapers and 21 digital sites.

Iconic Digital Titles

Iconic Print Titles

Letterkenny Live

This publication supports the work of the Press Council of Ireland and Office of the Press Ombudsman, and our staff operate within the Code of Practice of the Press Council. You can obtain a copy of the Code, or contact the Council, at www.presscouncil.ie, Lo-call 1800 208 080 or email: info@presscouncil.ie.