All the updated news related to duchenne muscular dystrophy

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Local News

Tipperary man finishing amazing feat by running the length of Britain for charity

Kiladangan man Ben Banaghan was the toast of Tipperary last week, after he completed his gargantuan fundraise run from the northernmost part of Scotland to the southernmost tip of England. The 25-year old ran the equivalent of two marathons a day ...

06 Oct 2022 at 13:33

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Derry asked to support Niall's walk for Action Duchenne

Derry is being encouraged to get behind an amazing young man doing a sponsored walk in aid of the charity, Action Duchenne. Niall O’Doherty(15) who was diagnosed with the life-limiting condition Duchenne Muscular Dystrophy (DMD) which almost ...

10 Aug 2022 at 14:33

National News

'Please help our boy' - Over €440K raised so far for little Archie diagnosed with genetic disease

A family in Dublin has been desperately attempting to raise vital funds for their 7-year-old son Archie who was diagnosed with Duchenne Muscular Dystrophy shortly before Christmas. Duchenne Muscular Dystrophy is a serious genetic condition ...

11 Jan 2025 at 14:47

Local News

Community rally for seven-year-old Donegal boy with terminal diagnosis

A group of people will complete a climb and cycle to fundraise for a young south Donegal boy diagnosed with a rare muscle disease. The fundraiser for Aaron Langan from Coxtown will start at Errigal followed by a 100km cycle home to Laghey,...

07 Aug 2024 at 15:33

Derry News

Derry GP runs the length of Ireland to raise £21k for Duchenne Muscular Dystrophy charity

A Derry doctor who ran the length of Ireland in five days has handed over £21,000 to the Duchenne Muscular Dystrophy charity. Duchenne Muscular Dystrophy is a life-limiting condition which affects mainly boys – at present, there is no ...

21 Jan 2022 at 21:33

Northern Ireland

Minister to ask trust for reasons it cannot offer new muscular dystrophy drug

The Health minister is to press the Belfast Trust on its reasons for not making available a new drug to treat muscular dystrophy. Mike Nesbitt insisted he would follow up on the issue after a 12-year-old boy from Newry said it was ...

18 Feb 2025 at 17:59

Children denied access to life-changing drug due to paperwork, say families

The families of children with a severe genetic muscle-wasting condition claim NHS failings are preventing them from accessing a drug that slows its progression. Clinical teams lack the “capacity to process the paperwork” ...

28 Feb 2025 at 00:01

Parents whose sons are losing ability to walk face ‘nightmare’ battle with NHS

Parents whose sons are losing the ability to walk have described the “nightmare” battle they face with the NHS to access a free drug. The medicine givinostat can slow progress of Duchenne muscular dystrophy – keeping ...

13 Jun 2025 at 00:33

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Tipperary man finishing amazing feat by running the length of Britain for charity

06 Oct 2022 at 19:33

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