All the updated news related to erythropoietic protoporphyria (EPP)

All the news related to erythropoietic protoporphyria (EPP) updated in real time

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forerythropoietic protoporphyria (EPP)

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Rare genetic blood disorder means Oran cannot go out in natural light

Imagine having to sit in complete darkness for a week, to recover from the severe effects of a genetic condition, for which you are being denied an available treatment. That is the desperate situation facing Oran Carlin (15) from the Templegrove ...

25 Jul 2023 at 12:33

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Derry patients denied blood disorder treatment available in Scotland

CLINUVEL, the pharmaceutical company which has developed a successful treatment for the life-limiting condition erythropoietic protoporphyria (EPP) is preparing to mount a legal challenge in the form of a judicial review against the National ...

12 Oct 2023 at 15:33

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