All the updated news related to leukodystrophy

All the news related to leukodystrophy updated in real time

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Toddler becomes first child in UK to receive revolutionary gene therapy

A 19-month-old girl has become the first child in the UK to receive a revolutionary gene therapy for a fatal disorder. Teddi Shaw suffers from deadly metachromatic leukodystrophy (MLD) but has been given the chance of a normal life thanks to one of ...

15 Feb 2023 at 00:01

Family

Mum who diagnosed her own daughter with an incurable genetic disorder is developing a new treatment to save her life

A scientist who diagnosed her own daughter with an incurable genetic disorder has set up a foundation to raise funds for research towards clinical trials and started a biotech company to develop a new treatment in a bid to save her life. Dr ...

27 Mar 2023 at 06:00

Health

Mother of boy, 10, with rare genetic disorder known to affect 200 people told he is ‘unlikely to survive past his teens’

The mother of a boy with a rare genetic disorder, known to affect around 200 people worldwide, has said doctors told her “nothing can be done” and he is “unlikely to survive past his teens”. Amy Sheridan-Hill, 46, a former teacher living ...

02 Mar 2026 at 00:26

Years
2026

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