All the updated news related to muscular dystrophy uk

All the news related to muscular dystrophy uk updated in real time

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More people live with muscular dystrophy than previously thought – study

There are over 40,000 more people living with muscle-wasting conditions in the UK than previously thought, according to a new study. Until now, experts believed more than 70,000 people had muscular dystrophy, but new research suggests this figure is ...

15 Feb 2022 at 09:55

Scotland

MSPs to be urged to improve care for those with muscle-wasting conditions

A mother whose 12-year-old daughter has a life-limiting muscle-wasting condition will on Wednesday call for better care for sufferers as Scotland moves into the post-Covid era. Muscular Dystrophy UK will later present its recommendations to a ...

19 Jan 2022 at 01:25

Man with muscle-wasting condition completes gruelling Ironman triathlon

A man with a muscle-wasting condition said it “feels epic” to have completed a gruelling Ironman triathlon, seven minutes within the 17-hour cut-off time. Chris Stennett, from Felixstowe, Suffolk, said that, within two months of being ...

20 Jun 2023 at 12:42

Scotland

Thousands with muscle wasting conditions ‘missing’ from records, says charity

Around 7,300 people with muscle wasting and weakening conditions are “missing” from official NHS Scotland records, according to a charity. Muscular Dystrophy UK said there is no consistency in recording data on how many children and ...

22 Nov 2024 at 09:26

Girl, 11, becoming youngest ever MBE ‘never thought this would happen’

An 11-year-old girl who is the youngest person ever to be made an MBE said she “never thought anything like this would happen”. Carmela Chillery-Watson, from Dorset, has LMNA congenital muscular dystrophy – a progressive ...

14 Jun 2025 at 09:30

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