All the updated news related to muscular dystrophy

All the news related to muscular dystrophy updated in real time

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Scotland

MSPs to be urged to improve care for those with muscle-wasting conditions

A mother whose 12-year-old daughter has a life-limiting muscle-wasting condition will on Wednesday call for better care for sufferers as Scotland moves into the post-Covid era. Muscular Dystrophy UK will later present its recommendations to a ...

19 Jan 2022 at 01:25

Home

Tipperary man finishing amazing feat by running the length of Britain for charity

Kiladangan man Ben Banaghan was the toast of Tipperary last week, after he completed his gargantuan fundraise run from the northernmost part of Scotland to the southernmost tip of England. The 25-year old ran the equivalent of two marathons ...

06 Oct 2022 at 19:33

Local News

Tipperary man finishing amazing feat by running the length of Britain for charity

06 Oct 2022 at 13:33

Nine-year-old with muscular dystrophy to model on runway at Bristol Fashion Show

A nine-year-old girl with a rare form of muscular dystrophy said she loves the adrenaline of modelling on the catwalk. Carmela Chillery-Watson will use a frame to walk the runway at the Bristol Fashion Show on Sunday, adding she ...

15 Nov 2023 at 07:00

Health

Dad whose incurable genetic condition causes tumours to grow on nerves and skin and affects two of his children fears no one has heard of it

An account manager with an incurable genetic condition causing tumours to grow on nerves and skin fears most people have never heard of the malady which also affects two of his three children, despite there being 25,000 cases ...

11 May 2022 at 08:25

Local News

Community rally for seven-year-old Donegal boy with terminal diagnosis

A group of people will complete a climb and cycle to fundraise for a young south Donegal boy diagnosed with a rare muscle disease. The fundraiser for Aaron Langan from Coxtown will start at Errigal followed by a 100km cycle ...

07 Aug 2024 at 15:33

Derry News

Derry GP runs the length of Ireland to raise £21k for Duchenne Muscular Dystrophy charity

A Derry doctor who ran the length of Ireland in five days has handed over £21,000 to the Duchenne Muscular Dystrophy charity. Duchenne Muscular Dystrophy is a life-limiting condition which affects mainly boys – at present, ...

21 Jan 2022 at 21:33

Local News

Muscular Dystrophy Ireland fund honours memory of lifelong Longford activist Hubert McCormack

Muscular Dystrophy Ireland (MDI) is supporting members living with neuromuscular conditions to get Assistive Technology to enhance their independence and quality of life. MDI recently established the Hubert McCormack ...

15 Nov 2024 at 09:33

Scotland

Thousands with muscle wasting conditions ‘missing’ from records, says charity

Around 7,300 people with muscle wasting and weakening conditions are “missing” from official NHS Scotland records, according to a charity. Muscular Dystrophy UK said there is no consistency in recording data on how ...

22 Nov 2024 at 09:26

Home

Derry asked to support Niall's walk for Action Duchenne

Derry is being encouraged to get behind an amazing young man doing a sponsored walk in aid of the charity, Action Duchenne. Niall O’Doherty(15) who was diagnosed with the life-limiting condition Duchenne Muscular ...

10 Aug 2022 at 14:33

More people live with muscular dystrophy than previously thought – study

There are over 40,000 more people living with muscle-wasting conditions in the UK than previously thought, according to a new study. Until now, experts believed more than 70,000 people had muscular dystrophy, ...

15 Feb 2022 at 09:55

Northern Ireland

Minister to ask trust for reasons it cannot offer new muscular dystrophy drug

The Health minister is to press the Belfast Trust on its reasons for not making available a new drug to treat muscular dystrophy. Mike Nesbitt insisted he would follow up on the issue after a 12-year-old boy ...

18 Feb 2025 at 17:59

Years
2025

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