All the updated news related to myalgic encephalomyelitis

All the news related to myalgic encephalomyelitis updated in real time

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People with ME invited to take part in major genetic study

People who have been diagnosed with myalgic encephalomyelitis (ME) are being invited to take part in the world’s largest genetic study of the disease. The study, named DecodeME and led by researchers at Edinburgh University’s MRC Human Genetics Unit,...

12 Sept 2022 at 09:08

Scotland

Belle and Sebastian singer: Living with ME makes me feel like a ‘non-person’

Stuart Murdoch, the lead singer of Belle and Sebastian, has said living with ME (Myalgic encephalomyelitis) left him feeling “invisible” and like a “non-person”. He took part in a protest outside the Scottish Parliament on Wednesday, calling for ...

28 Sept 2022 at 22:01

Study offers clues about the cause of chronic fatigue syndrome post infection

Researchers have found differences in the brains and immune systems of people who have chronic fatigue syndrome after an infection. According to the researchers, the findings, for the first time, suggest a link between specific abnormalities or ...

21 Feb 2024 at 13:36

BBC adds clarification to Dragons’ Den episode amid concern raised by ME groups

The BBC has added a clarification to an episode of Dragons’ Den after concerns were raised the show promoted “unfounded” claims that a product could help myalgic encephalomyelitis (ME). In the episode, which aired on January 18, businesswoman ...

27 Jan 2024 at 16:32

BBC defends Dragons’ Den after ME groups claim episode promoted ‘unfounded’ cure

The BBC has defended the inclusion of a wellness business in Dragons’ Den after campaigners for myalgic encephalomyelitis (ME) complained the show promoted “unfounded” claims that a product could help the condition. In the episode, which ...

25 Jan 2024 at 17:06

BBC takes Dragons’ Den episode off iPlayer to review concerns about ME product

The BBC has taken an episode of Dragons’ Den off its streaming platform after concerns were raised about a myalgic encephalomyelitis (ME) product. Campaigners have said businesswoman Giselle Boxer made “unfounded claims” in the BBC ...

29 Jan 2024 at 10:06

Health

Woman told exhaustion was just ‘A-level stress’ overcomes debilitating diagnosis to become acclaimed wheelchair dancer

A woman of 18 told by doctors that her constant exhaustion was likely depression and A-level exam stress, was diagnosed with a debilitating chronic illness which means she uses a wheelchair, but has overcome her adversity to ...

21 Nov 2023 at 07:00

Home

Talented County Derry Triathlon family’s sporting fundraiser following son's devastating ME diagnosis

The Waltons, a dedicated sporting family from Ballerin, are committed to battling the disease that has devastated their son's life since 2020 through a team relay fundraiser at the upcoming Roe Valley Sprint Triathlon. ...

30 Apr 2024 at 20:33

Health

Mum left housebound for nearly 17 years after miscarriage left her with ME now helps others with debilitating conditions

A mum who spent nearly 17 years housebound due to the effects of myalgic encephalomyelitis (ME) brought on after a miscarriage which nearly killed her, leaving her chronically fatigued and unable to walk upstairs, has ...

06 Jul 2023 at 07:00

‘No care pathways’ for severe chronic fatigue syndrome, inquest told

There are no current plans to address a nationwide deficiency in the provision of specialist hospital units and beds for patients with severe chronic fatigue syndrome, a senior doctor told an inquest. Dr Anthony ...

27 Sept 2024 at 15:30

‘Chopstick Sally’ allows housebound author to feel more included in society

An author who is housebound and largely bedbound has been using a miniature cardboard cutout version of herself on chopsticks as a way to “feel more included” in society. Sally Doherty, who lives in Surrey, was ...

13 Oct 2024 at 08:02

Woman with ME asked GP for help with feeding, inquest hears

A young woman with chronic fatigue syndrome begged her GP for help just months before she died, an inquest heard. Maeve Boothby-O’Neill, 27, had written to her doctor asking for help with feeding, as she was ...

22 Jul 2024 at 16:19

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