All the updated news related to myalgic encephalomyelitis

All the news related to myalgic encephalomyelitis updated in real time

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Woman died from malnutrition due to ME, coroner finds

A young woman died from malnutrition due to having severe chronic fatigue syndrome, a coroner has concluded. Deborah Archer, the assistant coroner for Exeter, Plymouth, South Devon and Torbay, said Maeve Boothby-O’Neill, 27, had died from natural ...

09 Aug 2024 at 17:46

BBC takes Dragons’ Den episode off iPlayer to review concerns about ME product

The BBC has taken an episode of Dragons’ Den off its streaming platform after concerns were raised about a myalgic encephalomyelitis (ME) product. Campaigners have said businesswoman Giselle Boxer made “unfounded claims” in the BBC business show ...

29 Jan 2024 at 10:06

‘No care pathways’ for severe chronic fatigue syndrome, inquest told

There are no current plans to address a nationwide deficiency in the provision of specialist hospital units and beds for patients with severe chronic fatigue syndrome, a senior doctor told an inquest. Dr Anthony Hemsley said he believed NHS ...

27 Sept 2024 at 15:30

People with ME invited to take part in major genetic study

People who have been diagnosed with myalgic encephalomyelitis (ME) are being invited to take part in the world’s largest genetic study of the disease. The study, named DecodeME and led by researchers at Edinburgh University’s MRC Human ...

12 Sept 2022 at 09:08

Inquest told of shortage of specialist beds for ME patients

There is a severe shortage of specialist hospital wards to treat patients with chronic fatigue syndrome as well as a lack of research into the disease, an inquest into the death of a sufferer has heard. Maeve Boothby-O’Neill, who had ...

23 Jul 2024 at 15:56

GP calls for better funding of research into ME, inquest hears

There needs to be better funding of the research into people suffering from chronic fatigue syndrome, the GP treating a young woman with the condition told her inquest. Dr Lucy Shenton said doctors needed more help to treat patients ...

02 Aug 2024 at 14:33

Father of ME sufferer calls for ‘radical’ reform in the treatment of the illness

The father of a young woman who died from malnutrition due to having severe chronic fatigue syndrome has called for a “radical” change in the treatment of the disease and said his daughter fell through a “huge hole” in the NHS. ...

09 Aug 2024 at 19:45

Doctors did ‘very best’ for young woman suffering with ME, inquest hears

Doctors treating a young woman suffering from severe chronic fatigue syndrome did all they could to save her life, an inquest heard. Maeve Boothby-O’Neill, 27, died at home in Exeter in October 2021 having suffered with ...

25 Jul 2024 at 16:31

Woman with ME asked GP for help with feeding, inquest hears

A young woman with chronic fatigue syndrome begged her GP for help just months before she died, an inquest heard. Maeve Boothby-O’Neill, 27, had written to her doctor asking for help with feeding, as she was hungry. ...

22 Jul 2024 at 16:19

Scientists develop first-ever blood test to diagnose ME

Researchers have developed the first-ever blood test that can diagnose myalgic encephalomyelitis, also known as chronic fatigue syndrome (ME/CFS). There is no current test for the condition and medics usually ...

08 Oct 2025 at 07:10

BBC defends Dragons’ Den after ME groups claim episode promoted ‘unfounded’ cure

The BBC has defended the inclusion of a wellness business in Dragons’ Den after campaigners for myalgic encephalomyelitis (ME) complained the show promoted “unfounded” claims that a product could help the ...

25 Jan 2024 at 17:06

Health

Mum left housebound for nearly 17 years after miscarriage left her with ME now helps others with debilitating conditions

A mum who spent nearly 17 years housebound due to the effects of myalgic encephalomyelitis (ME) brought on after a miscarriage which nearly killed her, leaving her chronically fatigued and unable to walk ...

06 Jul 2023 at 07:00

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