All the updated news related to sickle cell disease

All the news related to sickle cell disease updated in real time

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Sickle cell patients share delight over approval of new treatment

A cutting-edge gene therapy has been approved for NHS use for some patients with severe sickle cell disease. Casgevy, also known as exa-cel, was the first treatment to be licensed using gene-editing tool Crispr, which earned its inventors the Nobel ...

31 Jan 2025 at 12:30

World-first gene therapy for inherited blood disorders approved in UK

The UK’s medicines regulator has authorised a world-first gene therapy as a potential cure for two inherited blood disorders. The treatment, Casgevy, for sickle cell disease and beta thalassemia, is the first to be licensed using the gene-editing ...

16 Nov 2023 at 12:05

‘Transformative’ sickle cell treatment approved for NHS use

Around 4,000 people with sickle cell disease in England could benefit from a “life-changing” new treatment after it was given the green light for use in the NHS. Health leaders said that voxelotor, also known as oxbryta and made by Pfizer, will ...

03 May 2024 at 00:01

£1.65m gene-editing therapy offers hope of cure for some blood disorder patients

A £1.65 million treatment has been approved for use for some NHS patients, offering some with an inherited blood disorder hope of a cure. Campaigners reacted with joy as health officials approved a gene-editing therapy for certain children and ...

31 Jan 2025 at 07:34

Sickle cell patients have faced ‘poor care’ from ambulance staff – report

People with an inherited blood disorder have actively avoided seeking ambulance care because of past negative experiences, according to a report. Findings of a research project – commissioned by London Ambulance Service (LAS) NHS Trust and ...

22 Apr 2025 at 09:46

Health & Wellbeing

Sickle Cell Awareness Month: What is sickle cell disease and how do you know if you have it?

Almost 300 babies are born in the UK with sickle cells every year, according to the Sickle Cell Society, and the effects of sickle cell disease are believed to impact thousands. Yet, many people may not even know what sickle cells are or ...

31 Aug 2023 at 07:30

Sickle cell gene therapy not approved for widespread NHS use in draft guidance

A world-first gene therapy for severe sickle cell disease has not been approved for widespread NHS use in new draft guidance. The National Institute for Health and Care Excellence (Nice) said it needed “further data on its effectiveness,...

14 Mar 2024 at 14:27

Health

Mum ‘disappointed’ it took nearly fatal cancer diagnosis for doctors to address painful and lifelong sickle cell disease

A young mother has said she is “disappointed” it took a potentially fatal lymphoma diagnosis for doctors to address her painful sickle cell disease after the lifelong condition was “cured” by her gruelling cancer treatment. Blessing ...

18 Sept 2024 at 06:30

News

Jourdan Dunn donates blood and calls for more black heritage donors

Model Jourdan Dunn has highlighted the need for more black heritage donors to come forward to give blood – as she provided a blood donation herself. Dunn, known for appearing on the catwalks of London, Paris and New York, attended ...

19 Jun 2025 at 15:49

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