All the updated news related to spinal muscular atrophy

All the news related to spinal muscular atrophy updated in real time

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Newborn screening for spinal muscular atrophy ‘results in more children walking’

Screening newborns for a rare condition that causes progressive muscle weakness and providing early treatment can significantly improve mobility in children with the disease – including the ability to walk, a study suggests. Researchers in Australia ...

17 Jan 2023 at 23:30

Health

Woman unable to sit for 30 years as her hips and joints have fused is terrified her legs will “fail at any moment” making standing impossible

A woman who has not sat down in 30 years because of a debilitating condition which has fused her hips to their joints is terrified her legs will “fail at any moment” making it impossible for her to stand. Desperate to start specialist physiotherapy ...

11 May 2022 at 08:25

Babies with rare condition living longer thanks to advances in treatment

Almost three-quarters of babies born with a rare muscle-wasting disease are living longer thanks to advances in NHS treatment. Spinal muscular atrophy (SMA) is a genetic condition that causes muscle weakness, along with progressive loss of ...

07 Aug 2023 at 07:21

Scotland

NHS gets go-ahead for new drug to treat people with incurable blood cancer

A new treatment for incurable blood cancer that can help extend patients’ lives by more than three years has been approved for use by the NHS in Scotland The drug belantamab mafodotin – also known as Blenrep – has been approved for use ...

13 Oct 2025 at 11:28

Scotland first part of the UK to screen babies for ‘devastating’ rare condition

Scotland is to become the first part of the UK to routinely screen newborn babies for a medical condition that can have “devastating impacts” for both the infants and their families. Health Secretary Neil Gray confirmed that from ...

05 Sept 2025 at 10:56

Music

Jesy Nelson reveals her twins are unlikely to walk after diagnosis

Former Little Mix singer Jesy Nelson has revealed her twin babies are unlikely to ever be able to walk after being diagnosed with a rare genetic condition. The 34-year-old singer, who gave birth to twins Ocean Jade and Story ...

04 Jan 2026 at 19:45

Music

Charity chief praises Little Mix singer Jesy Nelson for sharing news of twins

The head of a charity has praised former Little Mix singer Jesy Nelson for “bravely” sharing the story of how her twin babies are unlikely to ever walk. Nelson, who gave birth to Ocean Jade and Story Monroe Nelson-Foster ...

05 Jan 2026 at 16:13

Parenting

Mum whose new baby was diagnosed with spinal condition after he suddenly stopped moving aims to raise £10k for support

A single mother whose previously “happy and healthy” newborn son was diagnosed with a rare spinal condition after he abruptly stopped moving at seven weeks old is now unsure if he will ever take his first steps. Amy ...

06 Aug 2024 at 06:30

Health & Wellbeing

What is spinal muscular atrophy? As Jesy Nelson shares twins’ diagnosis

Former Little Mix star Jesy Nelson revealed on social media that her twin girls have been diagnosed with a rare genetic condition called Spinal Muscular Atrophy (SMA) and may never be able to walk. The 34-year-old ...

05 Jan 2026 at 14:28

Family

Mum whose son has same rare ‘devastating’ SMA condition as singer Jesy Nelson’s twins wants her to know ‘there is hope’

A mother whose son has the same rare neuromuscular condition as ex-Little Mix singer Jesy Nelson’s twins has said she wants her to know “there is hope”. Sophie and Aden Cooke’s son Sid, now four, from Yalding in ...

09 Jan 2026 at 06:30

Music

Ex-Little Mix singer Jesy Nelson launches SMA petition after twins’ diagnosis

Former Little Mix star Jesy Nelson has launched a petition for SMA (spinal muscular atrophy) to be added to post-birth baby checks for serious health conditions, after her twins were diagnosed with SMA1. The ...

12 Feb 2026 at 12:42

Music

Ex-Little Mix singer Jesy Nelson’s SMA petition to receive Government response

Former Little Mix star Jesy Nelson’s petition for SMA (spinal muscular atrophy) to be added to post-birth baby checks for serious health conditions, which she launched after her twins were diagnosed with ...

12 Feb 2026 at 18:45

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