All the updated news related to spinal muscular atrophy

All the news related to spinal muscular atrophy updated in real time

Found 6

forspinal muscular atrophy

Order by:

Health

Woman unable to sit for 30 years as her hips and joints have fused is terrified her legs will “fail at any moment” making standing impossible

A woman who has not sat down in 30 years because of a debilitating condition which has fused her hips to their joints is terrified her legs will “fail at any moment” making it impossible for her to stand. Desperate to start specialist physiotherapy ...

11 May 2022 at 08:25

Babies with rare condition living longer thanks to advances in treatment

Almost three-quarters of babies born with a rare muscle-wasting disease are living longer thanks to advances in NHS treatment. Spinal muscular atrophy (SMA) is a genetic condition that causes muscle weakness, along with progressive loss of ...

07 Aug 2023 at 07:21

Parenting

Mum whose new baby was diagnosed with spinal condition after he suddenly stopped moving aims to raise £10k for support

A single mother whose previously “happy and healthy” newborn son was diagnosed with a rare spinal condition after he abruptly stopped moving at seven weeks old is now unsure if he will ever take his first steps. Amy Lewis, 33, from ...

06 Aug 2024 at 06:55

Scotland first part of the UK to screen babies for ‘devastating’ rare condition

Scotland is to become the first part of the UK to routinely screen newborn babies for a medical condition that can have “devastating impacts” for both the infants and their families. Health Secretary Neil Gray confirmed that from ...

05 Sept 2025 at 10:56

Newborn screening for spinal muscular atrophy ‘results in more children walking’

Screening newborns for a rare condition that causes progressive muscle weakness and providing early treatment can significantly improve mobility in children with the disease – including the ability to walk, a study suggests. ...

17 Jan 2023 at 23:30

Scotland

NHS gets go-ahead for new drug to treat people with incurable blood cancer

A new treatment for incurable blood cancer that can help extend patients’ lives by more than three years has been approved for use by the NHS in Scotland The drug belantamab mafodotin – also known as Blenrep – has been ...

13 Oct 2025 at 11:28

Years
2025

Iconic Media is Ireland's largest independently owned regional newspaper and media group, with an unrivalled audience in print, online and mobile. We have 19 regional newspapers and 21 digital sites.

Iconic Digital Titles

Iconic Print Titles

Letterkenny Live

This publication supports the work of the Press Council of Ireland and Office of the Press Ombudsman, and our staff operate within the Code of Practice of the Press Council. You can obtain a copy of the Code, or contact the Council, at www.presscouncil.ie, Lo-call 1800 208 080 or email: info@presscouncil.ie.