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06 Sept 2025

'Please help our boy' - Over €440K raised so far for little Archie diagnosed with genetic disease

The Ennis family have been told that there is no treatment for Archie's condition available in Ireland and so they will need to travel to the US.

'Please help our boy' - Over €440K raised so far for little Archie diagnosed with genetic disease

'Please help our boy' - Over €440K raised so far for little Archie diagnosed with genetic disease

Reporter:

Sandra Malone

11 Jan 2025 2:47 PM

A family in Dublin has been desperately attempting to raise vital funds for their 7-year-old son Archie who was diagnosed with Duchenne Muscular Dystrophy shortly before Christmas. 
Duchenne Muscular Dystrophy is a serious genetic condition which causes progressive muscle weakness. The disease is most common for young boys, with doctors saying that most boys end up in a wheel chair by the age of ten and life expectancy is also impacted.
Una Ennis created a GoFundMe page in order to raise money for the extremely costly treatment for her little boy Archie.
In an emotional plea on Facebook, Una said that doctors have told her that there is no cure for Duchenne Muscular Dystrophy, but that there is a new treatment available in the US.
Unfortunately, the treatment costs a staggering €3.2 million, a figure which is not inclusive of the costs of staying in the US for the treatment or any extra charges that may arise.
There is currently no treatment for the disease in Ireland.
The treatment would hopefully slow down the progression of the disease. 
On the GoFundMe page, Una writes: "As parents we want to show Archie we tried everything to stop this from happening."
So far, €441,107 has been raised of the €450,000 goal. More money is needed to get little Archie the treatment he desperately needs. If you would like to donate you can check out the Ennis' family's GoFundMe page.
Una concludes: "From our family to yours, please help our boy."

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